I have Relapsing/Remitting Multiple Sclerosis and live west of Toowoomba, QLD and travel to see Prof. Silburn. I have been a patient of Prof. Silburn for approx. 10 years. I find him extemely knowledgeable with fantastic bed-side manner and patient care. He is easy to talk to, without the sterile patient/doctor relations that some doctors convey. I feel reassured that he is my neurolgist and place total faith in his expertise. He is the best medical officer I have ever had dealings with. I would never see another neurologist.
Posted Date : 01/01/1970
Anonymous
Very easy to talk to and takes time to explain eveything in simple terms. Amazing for Parkinsons!!!
Anonymous
I had a sad, very sad, time with Professor Peter Silburn.
My DBS surgery (for Dystonia) took place on 27/09/2017. Previously very fit, ten days post surgery my walking ability was badly changed. I reported this back – endlessly. However, I steadily declined into disability.
For over two years
Professor Peter Silburn was unswervingly adamant that DBS was “definitely not responsible” for my ever increasing loss of mobility and disability. He suggested physio, a zillion “other” treatments and did even hospitalise me for ten days. No other problems were found. He remained adamant that DBS was “not the reason” for my ongoing deterioration. He could not help me – and did not need to see me again. I was gutted.
In severe pain, with two mobility walkers, a disabled parking permit, bruised and damaged body from falling to the ground, into glass doors and from unsafe shower and toileting – I was both desperate and wrecked.
My friends, colleagues and family agonised for me. (Me too.)
At 3pm on 28/12/2019 (in total desperation) I turned my DBS system to completely OFF.
Under just 1 hour I could walk again, use my legs, talk clearly, sign my name, and I walked with my old perfect balance. I used the toilet and shower with no problems.
My husband was ecstatic…
We sent a video of me to Professor Peter Silburn, his team, to all the Doctors who had tried to help me, and also to my friends, colleagues and family.
I requested my DBS system be urgently surgically removed. This took place on 29/01/ 2020. (The two now inactive electrodes do have to remain in my brain.)
Dystonia remains my problem but I have my “old” life back, walking, swimming, out and about and everything I had before DBS.
Note to self:
“How I wish this DBS system had been investigated early after surgery – when I couldn’t walk normally. ”
“How I wish all this had not been left for me to so traumatically deal with – very much alone.”
“Written by Barbara Edmiston who never gave up on herself…”
Anonymous
I had DBS a year ago in October 2019 with Professor Silburn. I felt i was treated very well from beginning to end by him and the hospital. Also for appointments i don’t have to wait long at all, unlike at least 2 hours at a public hospital. My experience has been good. Thanks Professor Silburn.
Anonymous
Dr Silburn was great with my Dad’s DBS but wasn’t interested in treating or advising on his worsening dementia, a very obvious Parkinson’s symptom. Had he been more forthcoming and helpful, it would have saved a lot of stress and lost time for my parents who unfortunately trusted him implicitly. Great while things were going well but I feel he let them down but not addressing the very obvious elephant in the room. His help would have made a big difference.
Anonymous
CLASS ACTION ANYONE !
I know i’m not the only one you needs answers and justice.